what to do if you get this problem?

TELL YOUR PARENTS. 

They will probably take you to the optician,  if not  beg them force them.

 Once you have been to the optician then the doctor and you have to go to school order a kindle and tell your teachers about it.

 When your reading a book with your class find out what the book is before you have started reading it and get it on your kindle. 

 Also do you know that when you lose a sense another one improves. This has happened to me. The sense that has improved for me is my hearing. My ear is so good that if I knew a song and it was stuck in my head I would go and sit down at the piano and fiddle around and after 20 minutes I would know the song with out looking and off by heart.

 So you should experiment with your senses ad see which one is the best and use it.

How do I cope?

I cope by looking at the side so if I was looking at someone I wouldn't look at them I would look just above their shoulder. Some people say to me, "WHAT ARE YOU LOOKING AT!" and they turn to see what it is. When I read I look above the lines. I have a kindle which helps me a lot. ALL the teachers in the Junior school know that I have this problem, this helps too. My friends don't seem to bother that I'm different because I'm not. my friends make sure everything is big enough and my teachers enlarge everything that I have to do; if they don't enlarge my homework, I don't do it. Please add comments like ask me questions about my eyes,tell me what would make this blog better, what you think I should do, but keep in mind that I'm only ten.

what do I miss?

I miss seeing things easily This gives you an idea of what I've seen and am seeing now and the past two years. SO what else do I miss? There are certain books I cant read because the text is too small on the paper book and I cant get it on my kindle. I gave up copeira as i could not continue this with my vision. I can't cycle on my own. In fact I need help from my friends and family for a lot of directing. I remember once on bonfire night it was dark and crowded , i can't see faces clearly . I went off independently with my friends and lost my Mum . I spoke to a stranger thinking that was my Mum , oooops! When we are at break time , I go to the playground and find it hard to find my friends because i can't see their faces clearly. Luckily I have great friends ;)

two years later

I'm now 10 years old and in year 6 .My class know that I have this problem hopefully they will read this blog and understand all about it.  Well I am hoping that my eyes will be fixed and better by year 7 or 8. you know what I'm kind of going to miss blobby (thats my name that i've named my blob) we've been through a lot together before I had it I didn't know who I was.

 The reason i'm doing this blog is because i'm going to go through something quite amazing. JEAN REPLACEMENT!

My little sister hopefully will save my eyes , we have to wait 4 months to see if she does not have the same disease , the doctors think it might be Stargardt's disease.

Welcome

Hi,

I am Florence and I live in Rome .

When I was 8 I woke up one morning with a blob in front of both my eyes. Since then  my life has changed.

I thought it would just be temporary until I told my Dad, we went immediatly to the eye doctor.

He was ready to operate on me because he thought my retina had detached !

They put a tap in my arm and flushed lots of colours into me to see what was wrong. I went in abig coffin and had to stay still until they said . They put head phones on me and I was squished, Mummy held my foot all the while ! ( Mummy says this is called an MRI scan)

Then we stayed in hospital for what seemed like a week

 I had lots of horrible tests on my eyes , which included electrobes on my head and watching spots!

Nobody knows why this happened

watch this space and see how i live with it!