an invisible disease

hello all,

Sorry  I haven't posted in ages, been really busy with exams and travelling and now i have my own laptop so I can post a lot more often.Anyway a  quick update 2018 now I will be 16 in July I can't actually believe it!!! In  May and June I will be doing my IGCSE-s in September I will  begin IB.

2017 was a busy year I was very lucky I had two school trips to Lisbon in Portugal and Berlin in Germany I was also lucky enough to go to Abruzzo for a night with school. I got to go to Perugia and l'isola d'elba. I went back to Leicester and as a christmas present I went to London.

Any way this post is about the fact that  stargardts  is an invisible disease. For example when you look at someone with SD (stargardts  disease) you dont realise straight away that they have it.

now I have never actually said before that it is a disability not in front of many people until this week.

I had an experience which i would rather keep to myself where I had to stand up for myself and say I I have a disability but  i still dont see it as a disability just a small struggle, but to others it is its a disability and others dont  understand it so i need to explain it simply.

I have finally accepted this that I do need to shout out alotmore, and I had a presentation well a 60 second speech about someone who inspires me.

So I decided to choose someone different not Nelson Mandela or Obama I chose Libby Clegg who is a paralympian sprinter with SD. I am friends wth her on facebook . I did my 60 second presentation on her and it got people really curious and its actually built up my confidence alot more with talking to people about my eyesight. I 've always been afraid of talking to people about my eyes and only  certain people like the SEN support team at school and family and close friends.

Now i am talking to most people about it and I feel quite confident.

I 've always had terrible nerves hopefully now is a start to them finally being okay.

thanks for reading

Sorry about typos 

Flo

sorry

hey everyone,
sorry i have been so busy since my last post. it was ages ago i sat down and wrote something i have been meaning to for quite a while now and finally i have sat down andopened up the laptop.
i passedf mty italian GCSE YAY!!! abd i have been studu
ying very hard for all the others i have to do in june 2018.
a lot has happened in the last 8 months.
one of the big things for those with Star gardts would have to be Libby Clegg.
Libby Clegg has Star Gardts the same as me and manu more across the world. she won 100m gold in the para olympics- since then Star gardts seems to be recognised everywhere. i saw a clip of two guys who had star gardts on the Ellen show.
some exciting news for me is a PE teacher at school has contacts with Libby Clegg and has out us in contact.
so yeah.
i promise to keep writing as often as i can and i am sure I wonìt take an 8 month break.  At the moment I am getting boat loads of homework and coursework.
Hope you all had a great christmas and a great start to the new year.

thanks for reading.
:) Flo

BIG STUFF

So, some of you may not know that I was born in Leicester.I lived there for 4 years then moved here to Rome in Italy. And now, Leicester have an amazing story. It all started with a football team that never did very well but always had loyal supporters behind them. Until Claudio Ranieri became manager. We started winning games and getting some attention. Earlier this week on Monday night Chelsea played Spurs. They drew which meant that Leicester win the premier league. I was in bed because school was the next day and at around eleven my dad comes into my room screaming WE WON WE WON.  Me,my mum and my dad all sat around the TV watching leicester party. It was incredible.

On Tuesday morning I went into school with 2 Leicester city tops in my hand and a hat saying LCFC. Everyone congratulated me everyone was talking about my home town. I went into the lunch room and saw a sign sayin LEICESTER CITY FC CHAMPIONS it was incredible. I will always remember this one boy in my class  turning round to me after our teacher told everyone I was born in Leicester and he said YOUR FROM LEICESTER  I answered laughing yes.

It was an incredible moment.

Then last night we had a party for Leicester it was great loads of people came over and watched Leicester lift up the trophy  everyone brought something to do with Leicester I had a great time. 

This week everyone has been so nice to me and we'll I have just been so happy and I am honestly EXHAUSTED from this weeks HUGE party.

In other news on the 16th of May I am going on another school trip for 5 days in The Alps, we are going on a train then a bus. We are all going mountain biking, white water rafting  and we are also going to a water park. We will be returning on the 20th and then on the 21st my family and I will be going to Leicester for three days for a very important wedding. And we will come back to Rome on Monday the 23rd. After that we will only have 4 weeks and 2 days of school until the summer holidays. YAY.

I will try to take photos of this week for you. 

As usual comment any questions you have  that I can answer in next weeks blog.

OH and I almost forgot I know it's very late but, it's my 3rd blog anniversary. And it's all thanks to you all you loyal readers.
Thank you so much.

Remember to comment!!

From Flo
xoxoxo 

I have a lot to say

Sorry, I have been so busy recentlyI haven't  had time to write on the blog.
I have a lot to say.
 First of all I have joined a support group for young people with star gardts . It's mostly just young people in the US. I have made some friends and it's interesting to know how they feel about it and things.

A few weeks ago we had our GCSE choices, we learnt about what we'd be studying. It's very interesting. I chose music, art, history and Italian AS. (AS because I'm doing GCSE this year) I chose the ones I find enjoyable, easy and that I am good at.

It's now the Easter holidays and we have a lot coming up. We have may week when my class and I go to the alps. Then we are going to England for a wedding straight after May week but it'll be very fun, we have no half terms, so this is our last holiday of the scholastic year😭😭

Christmas and 2016

Hello,
For Christmas I got many things I got a tv ,so I can plug in my laptop and have a big screen, I got 3 records 2 Beatles ones and 1 beach boys one. I got 2 cds 1 by the coral a band I just started to like today infact and Adele's new cd. I have been listening to a lot of Beatles recently  playing their songs on my guitar I learnt how to play the lead guitar in I feel fine, Day Tripper and Ticket to ride I have constantly been practicing and I have also been playing their songs on the piano and I am reading The Beatles Tune In (I think that's what it's called) which is about their lives how they met and how they got famous.
I got lots of other stuff for Christmas but I won't bore you with all of it.
For my new years resolutions I have decided mine are going to be pass my Italian GCSE and concentrate on my music, which is hard because I play 4 instruments and I sing. I was thinking the other day how people say if I had your problem I'd go mad and a thought popped in my head that the only thing that keeps me sane is playing and listening to music. I always listen to it on my phone when i am out ion my record player in my room. but I don't usually listen to modern stuff I listen to very few modern pop musicians I listen to very old stuff.

anyway have a great year to all my loyal readers please comment questions , share my blog to your friends and family members and follow the blog

luv ya :)

Christmas is nearly here

Hello again,
My loyal readers from all round the world I was just reading my stats like what countries read my blog and how many I looked at this month and at the top there were 144 people from russia I mean i probably only know about 5 people from Russia. Anyway I would just like to thank you all for being there for me, whenever I look at stats and see how many people read this it makes me forget about the people who aren't nice to me.
For christmas  my family and I are just gonna stay at home and you know have a.nice family christmas at home. We never go away for christmas we always stay here.
Anyway I think you may have guessed we are finally on our christmas holiday we finished on Thursday.
Please comment any questions for me and I would love to hear what you and your families will be doing for christmas even if you don't celebrate this time of year what will you be doing this month. Thank you again and hope you all have a very happy christmas and a merry nw year. Thanks for your support. Oh and don't forget to follow my blog🎅🎅🎅🎄🎄🎄🎁🎁🎁🎋🎋🎋🎉🎉🎉🎊🎊🎊🎈🎈🎈💛💛💙💙💜💜💚💚💚💚❤️❤️❤️💗💗💗💓💓💓💂👼👼👼👼😄😄😄😄😄😄😄😄😄😄😄😄😄😄😄😄😄😄
See you next time.

The inspirational people in my life at the moment

At the moment I am finding a lot of inspirational people.
So I thought I might tell you about these people.
My Great Aunt just conqured cancer I am so proud of her and she was really posotive when we went to see her during the summer holidays. She has inspired me to stay optomistic and strong no matter what happens.

At the moment I have been  listening to a lot of Beatles, I have also been reading  a book about their lives before they became famous and it's made me beleive I can do anything with my life as long as i want it enough.
I found some inspirational quotes from their songs, here you go.
Take these broken wings and learn to fly - blackbird
Life is what happens when you're busy making other plans - beautiful boy John Lennon
Life is very short and there's no time for fussing and fighting my friend - we can work it out
And many more.

Please comment ask me any questions and share this blog with your friends and family.
Thank you for reading see you next time bye!!!